In Australia, over 2,000 children are living with childhood dementia, a disease causing a child to progressively lose skills such as the ability to write, read, talk, walk, and play. This can happen over months, years, or decades as their brains slowly deteriorate, eventually leading to the inability to keep the body functioning properly and, eventually, to keep the body alive. Childhood dementia causes around 90 deaths a year, a similar number to deaths from cancer in children aged 0-14.

Childhood dementia is currently overlooked both as a health and social issue. Little Heroes Foundation aims to contribute to treatments and eventual cures for this disease, as well as equitable and quality care for people and families affected.