Australians living with a rare disease. We provide a strong, common voice to advocate for health policy and a health care system that works for people living with a rare disease. Our person-centred focus sees RVA working with key stakeholders including: people living with a rare disease/advocates, key peak bodies, governments, researchers, clinicians and industry.

On 26 February 2020, the National Strategic Action Plan for Rare Diseases (the Action Plan) was launched by the Minister for Health. RVA led the collaborative development of the Action Plan and is now leading its collaborative implementation.