Pierre Robin Australia began as a social parent support group in early 2008, after parents of a child born with the condition struggled to find assistance. Through dedication and the generous support of many, Pierre Robin Australia was formed.

As the only registered organisation for Pierre Robin within Australia, we proudly work in support of our members to empower them in managing and living with the condition.

Pierre Robin Australia is a community health promotion charity which exists to provide Information, Support and Education to sufferers, families and carers of children diagnosed with Pierre Robin Syndrome/Sequence (PRS) and associated conditions.

Our aim is to create a strong peer support network to assist information exchange and increase social interaction opportunities for families and carers, to help them cope with the high level medical, physical, social, emotional and developmental needs of managing the condition. The demands of Pierre Robin Sequence can put extreme stress on families and this peer support helps to reduce the feelings of isolation and depression that many families and carers experience following diagnosis and through the years ahead.